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Never heard of it before!





(Text of Rita's link)


Doctors puzzled over bizarre infection surfacing in South Texas


Web Posted: 05/12/2006 10:51 AM CDT

Deborah Knapp

KENS 5 Eyewitness News


If diseases like AIDS and bird flu scare you, wait until you hear what's next. Doctors are trying to find out what is causing a bizarre and mysterious infection that's surfaced in South Texas.


Morgellons disease is not yet known to kill, but if you were to get it, you might wish you were dead, as the symptoms are horrible.


"These people will have like beads of sweat but it's black, black and tarry," said Ginger Savely, a nurse practioner in Austin who treats a majority of these patients.


Patients get lesions that never heal.


"Sometimes little black specks that come out of the lesions and sometimes little fibers," said Stephanie Bailey, Morgellons patient.


Patients say that's the worst symptom — strange fibers that pop out of your skin in different colors.


"He'd have attacks and fibers would come out of his hands and fingers, white, black and sometimes red. Very, very painful," said Lisa Wilson, whose son Travis had Morgellon's disease.


While all of this is going on, it feels like bugs are crawling under your skin. So far more than 100 cases of Morgellons disease have been reported in South Texas.


"It really has the makings of a horror movie in every way," Savely said.


While Savely sees this as a legitimate disease, there are many doctors who simply refuse to acknowledge it exists, because of the bizarre symptoms patients are diagnosed as delusional.


"Believe me, if I just randomly saw one of these patients in my office, I would think they were crazy too," Savely said. "But after you've heard the story of over 100 (patients) and they're all — down to the most minute detail — saying the exact same thing, that becomes quite impressive."


Travis Wilson developed Morgellons just over a year ago. He called his mother in to see a fiber coming out of a lesion.


"It looked like a piece of spaghetti was sticking out about a quarter to an eighth of an inch long and it was sticking out of his chest," Lisa Wilson said. "I tried to pull it as hard as I could out and I could not pull it out."


The Wilson's spent $14,000 after insurance last year on doctors and medicine.


"Most of them are antibiotics. He was on Tamadone for pain. Viltricide, this was an anti-parasitic. This was to try and protect his skin because of all the lesions and stuff," Lisa said.


However, nothing worked, and 23-year-old Travis could no longer take it.


"I knew he was going to kill himself, and there was nothing I could do to stop him," Lisa Wilson said.


Just two weeks ago, Travis took his life.


Stephanie Bailey developed the lesions four-and-a-half years ago.


"The lesions come up, and then these fuzzy things like spores come out," she said.


She also has the crawling sensation.


"You just want to get it out of you," Bailey said.


She has no idea what caused the disease, and nothing has worked to clear it up.


"They (doctors) told me I was just doing this to myself, that I was nuts. So basically I stopped going to doctors because I was afraid they were going to lock me up," Bailey said.


Harriett Bishop has battled Morgellons for 12 years. After a year on antibiotics, her hands have nearly cleared up. On the day, we visited her she only had one lesion and she extracted this fiber from it.


"You want to get these things out to relieve the pain, and that's why you pull and then you can see the fibers there, and the tentacles are there, and there are millions of them," Bishop said.


So far, pathologists have failed to find any infection in the fibers pulled from lesions.


"Clearly something is physically happening here," said Dr. Randy Wymore, a researcher at the Morgellons Research Foundation at Oklahoma State University's Center for Health Sciences.


Wymore examines the fibers, scabs and other samples from Morgellon's patients to try and find the disease's cause.


"These fibers don't look like common environmental fibers," he said.


The goal at OSU is to scientifically find out what is going on. Until then, patients and doctors struggle with this mysterious and bizarre infection. Thus far, the only treatment that has showed some success is an antibiotic.


"It sounds a little like a parasite, like a fungal infection, like a bacterial infection, but it never quite fits all the criteria of any known pathogen," Savely said


No one knows how Morgellans is contracted, but it does not appear to be contagious. The states with the highest number of cases are Texas, California and Florida.


The only connection found so far is that more than half of the Morgellons patients are also diagnosed with Lyme disease.


For more information on Morgellons, visit the research foundation's Web site at www.morgellons.org.



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The only connection found so far is that more than half of the Morgellons patients are also diagnosed with Lyme disease.

It almost sounds like it's piggybacked from the ticks carrying the lymes. some sort of parasite that ticks carry?
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I agree with you Lunamother. I was diagnosed with Lyme's Disease many years ago, was treated for a LONG time with antibiotics and have followed the disease research since then. It seems they are finding many different bacteria that coexist with the Lyme bacteria. It's entirely possible that there could also be a coexisting parasite.

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Ticks are bad here this year too Grubby. I've found 3 crawling on me already and DH has had one on him. Of course, I'm out in the timber more now with geocaching so that's probably why. Still, I don't like them!



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You all that are having problems with the ticks might try using lye soap when you take a shower or bath. Hubby and I use lye soap on a regular basis and we are out in the untreated yard and the woods on a regular basis. I've had one tick bite and have only found one tick crawling me so far this year so it's working. Maybe this will help some of you, it did for us.

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That is totally gross...ewww! I sent the story to my mom and she said it wasn't a very nice thing to send on Mother's Day! Ha ha!



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Please don't rely on Lye soap. We have ALWAYS used home made lye soap at our house and I had Lyme's disease. We have been having ticks here as well and do a daily check of ourselves AND each other to make sure we don't have them on us. The deer tick, the most likely but not the only one to carry lyme's disease bacteria, is very tiny and easy to miss. According to all research, the tick needs to be attached for 24 hours before it transfers the infection but.... My Nephew, was diagnosed and treated just last year for Lyme Disease. It's there and it's not going away soon. Lyme disease, if not caught in time is a devastating disease and even IF caught early can cause life times of problems. Please, I care enough

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Please don't rely on Lye soap. We have ALWAYS used home made lye soap at our house and I had Lyme's disease.

I didn't post that to say that we rely on Lye soap to keep them away. We still do regular checks for ticks but we just don't find any. I can't explain it. It is very strange.

Thanks for looking out for all of us Mother. I didn't take your warning in a negative way.
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I'm so glad yo didn't take it the wrong way LS.

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getcha some guineahens- nature's tick eradicators- they eat their weight in ticks per day

(plus they are really cool to have around...)

I still find the occasional tick, but only on the dog that wanders off our property, and ETexas is Tick Heaven

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