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Jeepers, glad you did go to the doctor.  Some of the B/p issues could be the stress you have been under trying to get the house sold. Mine had been going up really high but not that high when GS was living here driving me up a wall. I am happy to say it is now back down too normal but need to watch the blood pressure meds I am on also. Don't need it getting too low. But 120/74 works for me. Not sure yet if my meds will be adjusted or not. Will find that out tomorrow. And I am going to try to get him to send me for an MRI of my knee. This is not a bone-on-bone issue as the X-Ray showed that. Those gel injections made the issue much worse. So will see how that goes also.

 

And yes, :hug3:from me to everyone on here that wants a hug. :grouphug:We all need those now and again. 

 

And for everyone that will be traveling and are having health issues. Keeping all of you in :pray: 

And to top off the friends I am losing due to being called home, another friend of mine called and said her sister passed away this morning. What is going on? Too much death around here. I need to send out more sympathy cards. Need to take some time out to get that done in the morning before going to doctor. Sent some out already and here we go again. 

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We're a struggling bunch right now, aren't we?  :grouphug:  Everyone take good care... 

 

Sheesh, Miki!  :wacko:  First Ambergris and now you.  They have labels: This End Up!!!  :hug3: 

 

Today I saw the PA again.  She agreed with my evaluation:  L ear clear.  R ear very nearly clear.  (what is taking 4 wks to clear a fairly mild ear infection?) 

 

As for WHY I'm getting bad shakes when I do "any little thing"....she's deferring to a neurologist; saying she thinks it's an MS episode.  :sigh:   Unless something has changed, I don't DO MS episodes.  I'm not Relapsing/Remitting.  And by the time I get ready to go somewhere...drive (well, I don't drive) in....get up elevator using wheelchair with DH....using restroom....  I was having shakes very bad again.  :gaah:  It also blurs my brain...which is very annoying. 

 

I really was hoping she'd say it was a side affect of the steroid.  She didn't.  But was it?  Or just being worn out battling a not-that-serious-just-persistent ear infection???  :shrug:  

 

Then there is a mystery issue that's spreading:  High sensitivity when touching the skin on my neck/back.  First it was at the base of the skull.  And over the kidney area.  Then it was down the neck to shoulders.  Today this high sensitivity to touch, (like OW!) goes all the way down my back.  :scratchhead:  PA abdicated on that one - saying I should check with neurologist.   Yeah...MS is that weird but no.  Not sure I've ever heard of THIS reaction - tho it is apparently inflammation just under the skin.  MS is inflammation but referring to the body's nerves.  Not general subcutaneous.... At least as I've always understood it.  Dunno.  That and the shakes are the symptoms I'm still dealing with. 

 

DH started talking about not going to MO....flying by myself (one plane change).  Well, airports do pretty well in getting us folks using wheelchairs from Point A to Point B.  So I'm not worried about that.  I am a bit concerned at I will look like.  I can keep saying:  I'm fine.  This is within my "normal parameters"....  But shaking that bad...maybe I'll claim Parkinson's?  :rolleyes:  That might do it.  I need to remember PB&J sandwiches...keep energy leveled up.  Lots of water.  Ugh....hard enough to get into restroom when the floor isn't moving tho.  However, I am able to sit in the second seat of the plane, close to the front restrooms.  They are only a couple handholds away from that seat.  BeenThereDoneThat many times now.  I can do this.....  :woohoo:  ....ahem,  :pray:  

 

I would really love prayer for this trip tho.  Just get me there and I can rest all I need with my RN friend.  She'll watch me and I'll be keeping an eye on her too. 

 

MtRider ....... Old Age Ain't for Sissies, RIGHT?

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The shakes remind me of Katharine Hepburn. She had them really bad too. People thought she had Parkinson's. I saw an interview with her, decades ago, where she explained what it was. She had something called "essential tremor" that wasn't related to Parkinson's at all. That might, or might not, give you some clues. 

 

When are you flying out? You probably said but I can't remember. 

 

 

What is it with ear troubles now. Something floating in the air? Air pressure difference? I hadn't done anything differently and hadn't been around any plant life. Just all at once my weak ear was weepy and swollen. The pharmacist warned me that 5% of people with 'cillin' allergies can have a reaction to keflex. We probably know who that will be. :wave:    I'm only on it for 1 week though. 

 

Littlesister, good luck with your Dr. appointment! 

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Holy moly Jeepers you are very lucky you had a Dr apt that is a crazy high BP and I'm surprised they didn't actually send you to the hospital to be monitored for a bit even though the fast acting med worked. Do you see a cardiologist? It might be time to get a specialist involved with your BP issues. Do you monitor your BP at home? If not it would be a good idea to get a home BP cuff and check it twice a day. :hug3:

Miki so sorry you fell but relieved you didn't hurt yourself worse. Take it easy!

Mt Rider the skin sensitivity could be an effect of weaning of the prednisone. Dr's aren't familiar with the effects even for those who have been on high doses weaning down slowly. I and others in my support group for my autoimmune skin blistering disease that I had 13 yrs ago reported lots of symptoms our Drs weren't aware of. Your experience sounded familiar to me as I had joint pain, and skin sensitivity as some of the symptoms I experienced. I don't recall chills, but I may not have had all the possible symptoms. You may be particularly sensitive to the effects of prednisone as if your adrenal glands are already stressed or you are in adrenal exhaustion, your body may not be as fast to ramp up your natural cortisol. I hope you start to feel better soon :hug3:

Littlesister you're being very productive be sure to take time to rest in there too!

I'm taking my mom to get her Mohs surgery at the dermatology office tomorrow, we are going to stay in the hotel tonight as the apt is early in the morning. It could take up to 9 hrs as they have to send it to pathology and we wait to see if they need to do more scraping. I'm hoping they get it all in the first pass as I don't think I have it in me to sit there with her being anxious that long. I'm taking a few good books to read and I took Friday off as well. Then Monday back to St Louis for her cardiologist to get clearance for her cataract surgeries and the first one happens on Tuesday, the the other one a week later and the next day my son has Ear surgery to repair his ear where it formed a keloid from his incident a few years ago that cut his ear in half. So I'm emotionally a wreck due to my mom's over the top anxiety about all of it (I get it it's scary) and already exhausted and nothing's happened yet. So please keep us in your prayers we'll need all the calming good energy you can send our way. 

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Praying for you and yours @Becca_Anne!  You need to rest, too.  Could be a long week or so!

@Mt_Rider, Praying for your side effects to dissipate and a smooth flight!

I'm glad that you are getting so much canning done @Littlesister!

And @Jeepers, wow!  That's a high blood pressure reading!  I hope they get it regulated somewhat!

 

A little sore still this morning, but walked anyway and then walked dogs.
I have some VA phone calls to make and then find items and make Christmas sheep ornaments. The sheep represents the Lamb of God so I hope to open the door to talk to the little ones a little bit when I am with them.
That's all on the list for today.

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Sounds like you are having a busy day, Miki.  Glad you are doing better from that fall. 

 

I lied about my not going to the store challenge. :24: Went to doctor and then to store to buy wide mouth canning jars.  And I did pick up some lettuce and cucumbers, and carrots to nibble on for a snack. All fresh does that count?

The doctor took a look at my X-rays again and also, we talked in detail how my knee was doing. The swelling of the whole knee, pain going both up and down the leg as well. I told him what that orthro doctor did and how he hit the bone twice when he injected it with that gel injection. I do not have a bone-on-bone issue but a meniscus tear. He is sending me to a different doctor but wants me to check them out first and then give him a call for the referral. There are two he wants me to check out. Both are around the hospital on other side of Suffolk but different locations. He told me to use a knee brace and to be careful how I move around as it could tear worse. I already knew that but not to use a brace on it. So stopped off at drug store and got a brace. Again, doctors missing what is actually wrong with you. I am so over not getting the proper care. My B/p was great 118/70. So that is going back to normal and stabilizing. I guess not having GS here to aggravate the mess out of me is helping. 

Need to wash the jars and label them to put away and clean off counters and get the jars I just bought into the dishwasher. Might not can today as I have to get the clothes washed if I want clean clothes to wear the rest of the week. But maybe do some more meatballs. I am going to look up a recipe for Swedish meatballs to see if they can be canned that way. I did the other ones for spaghetti, but not any Swedish ones for other things. 

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@Becca_Anne. I do see a cardiologist for my POTS. She did the holter test, the test where they use a handheld device and scan like an ultra sound (can't think of the name of it.  Echocardiogram?) EKG, and something else. Regular doctor did another EKG yesterday. So far, the heart is fine. I failed the tilt table test though. He wasn't letting me leave if that pill hadn't worked. They know my blood pressure issues but it has never been that high before. Today, I took the new dosage he ordered and was awful. I felt just like I was when I was fainting from POTS. I was on the floor about an hour to keep from passing out. I checked my BP. 95/61. Its the cuff kind. For someone who functions with high BP, that was terribly low. I can't prevent passing out unless I 'hit the floor' and stay there for awhile. I have a follow up appointment tomorrow. I took a picture so I can show them. :pout:

 

It's great having our own nurse here.  

:hug3:   :sSig_thankyou:   :hug3:

20240918_125508.jpg

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@Becca_Anne. Sending many prayers your family's way!!! I think it's even harder on the ones who aren't having the procedures, than it is on the ones who are. 

 

I had a very nasty keloid scar on my breast from a mole removal. About the size of a dime and angry red. I kept colodial (sp) silver on it and it finally went away. I don't know if the silver helped or not but today, after many years, I can't even find the scar. And it was pretty bad.  Healing prayers for your dear son. And calming prayers for your DM. Most of all, prayers for you to handle other people's angst. 

 

Get into your books and stay there for awhile. :hug3:

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I'm still in the parking lot. Lonely. Can you tell?  LOL. 

 

Inspector is at the house now. Tomorrow is yet another inspection. That one for the bank to make sure the house is worth what they are borrowing for. Appraisal. At least I'll be at the doctor for most of that one. I think that will be all unless they can come up with something else. 

 

AND, the feds lowered the interest rate by a half a point today! They were only expecting a quarter of a point. Hopefully that will spur on a buyer. And maybe by the time I get some money to put down on the Indy house, it could drop again. Wouldn't that be nice. As it is right now, I can just barely afford that house. Getting out from under the Ohio debt will help a whole lot.

 

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Yeah, Jeepers.  I believe my ear issue is due to the mass amount of plant life well watered this year.  :lois:  Our arid conditions don't usually produce this much. 

 

Essential tremors vs Intentional tremors.  Intentional is, of course when you shake while moving your hand (intending) to do something.  Essential is when you have tremors while just sitting/laying still.  When I tire the muscles of hand/arm/leg, I can get essential tremors just sitting/laying.  The twitching is annoying and kinda neurologically "itchy" to me.  Intentional tremors can drive me nuts when they prevent me from doing something efficiently.  Hand/arm can veer off course, etc.  I can also have muscle weakness so that when I pull a heavy book off a high shelf, I need to have a landing zone cuz gravity is going to slam that book downward.  Lighter objects don't give me that much trouble. 

 

My tremors can start up if I've been startled.  When I'm fatigued.  :rolleyes:   ...cuz I'm alive that day....  :shrug:  ;)   I experience little micro, "itchy" tremors in the muscles too.  Those aren't really visible....I don't think they are?  Frankly, by now, I don't pay much attention unless I've got some grande ones showing up...like these recent ones.  The PA did the Catch Me If You Can exercise yesterday.  I'm supposed to touch my forefinger to here as she moves it around.  I can do that basically but it's a strain and I'm not always right on her finger.  I test myself - see how much "off" I'll be dealing with - by holding my hand/arm straight out, parallel to ground.  Then slowly turn palm down/palm up - back and forth.  See how long before it malfunctions and how badly.  It will always malfunction at some point.  Usually doesn't take too many hand flips before my coordination can't even do that move...and my arm muscles are in spasm.  In normal life, I avoid holding anything of any weight out away from the body.  Elbow tucked in - much safer to manage.

 

Becca Anne, I was really hoping that the skin sensitivity was related to coming off just 5 days of steroid.  PA said no but.... :rolleyes:   It was present before I took the steroid tho...just at base of spine.  Then increasing to all over my back in the past couple days.  DH adjusted my back this morning and quite a lot of the sensitivity is gone now.  Better nerve action thru a straightened spine?  :shrug:   I agree that even the docs cannot know ALL about our body functions.  Especially cuz there are a zillion variations of body function and malfunction.  

 

:pray: for your mom and all you have to do for her health issues.  I've had the Mohs procedure for a basal cell area just below my eye.  That clinic had an in-house lab so while I had to wait ....mebbe 20 min, I was numbed up and didn't feel anything.  If they get "clear margins" under microscope, they just close up the 'scooped out' area.  That was the part that was traumatic for me.  My nervous system suddenly went off the chart during the second round of Novacane needles.  I overheated!   But we had  big ice/gel packs at-the-ready and surgeon was glad to let DH deal with my MS related responses.  I didn't let go of DH's squashed hand during the whole reconstruction.   The plastic surgeon wasn't about to make him leave the room.  :o    A room that was bigger than a closet....and a LOT cooler would have helped me.  Fortunately, when my system goes into a frantic mode, I can lock down all muscles - freeze frame!  Takes a while to reconnect to all those muscles when it's safe to move again.  Very stiff/robotic motion - even speech is difficult.   I'm not good with needles and with the heat/claustrophobia....  Well, I hope your mom doesn't run into the extraneous factors that I have.  The only part of the procedure that's actually painful is the numbing needles... 

 

MtRider  :pc_coffee:

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Jeepers, take your blood pressure monitor with you tomorrow to your doc appt.    That way, if they tell you your monitor might not be accurate if it hasn't been checked/calibrated (I had this happen to me....and there seems to be no way to calibrate them, whatever that means),  you have it with you and they can take your bp with yours and theirs.  My monitor was fine.

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Thanks OOTO. Good advise and I will. It's not even a year old but probably from China so...

 

I just got a text that the surveyor's are next on the list. At least they won't be in the house. Or me away from it. Jimbo is right on the property line with everything. Hope he left an inch. Crimony. 

 

Hope nothing else is thrown at me. I'm thinking it is affecting my blood pressure now. 

 

Depending on what all is found, they have paid for; radon inspection, total home inspection, HVAC inspection, basement inspection, title insurance and now a survey. I'm still waiting for all of the results. This is nearly as bad as waiting for medical results. 

 

Stick a fork in me, I'm done. I don't think I can deal with much more stress. I'll probably be going through it again when the results come in and dealing with a buyer. I don't mind giving a credit I expected that all along. I just don't want them to back out. It isn't about the money for me. It's about getting gone.

 

And a house up the street just went up for sale. Of course it did. It looks nicer than mine from the outside. It's for sale by owner though, so I can't Zillow it. Or maybe I can to see a estimated value. "My" buyer has kids. House up the street has a play yard, albeit their yard is smaller than mine. 

 

Continued prayers will be greatly appreciated! Please. 

 

Never again. 

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Becca Anne, praying for your mom and your son that all will go very well for both of them. And praying that you have the energy and strength to get through this. It is a lot to deal with. 

 

Jeepers, hopefully all this will be over soon. You have been through enough to make anyone's blood pressure go up. Hopefully when it is all over and you are finally settled in Indy, the blood pressure issue will stabilize. Keeping you in prayer as well. 

 

Mt. Rider, I hope they can get you straightened out soon. You seem to have a lot going on health wise as well. Keeping you in prayer also. 

 

I had a busy day today. first doctor, then store for wide mouth jars. And for anyone that doesn't know yet. Canning jars have gone up in price again. 

 

Came home and washed down the jars I canned yesterday, labeled and put away. Then got the clothes washed. Yep, the sweetish meatballs are in canner now. Only one canner going. Just 8 jars of those. 

Edited by Littlesister
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On 9/17/2024 at 3:48 PM, Jeepers said:

That was my day. Over 2 hours in the doctors office for an ear exam. 

 

Gotcha' beat! :lol:  Spent over FOUR hours in a dentist's office waiting to get my crown filed/shaped? It was taller than the tooth beside it and made it difficult to chew on that side. Every time I tried to chew I wound up with a dull ache in the other tooth......not pleasant at all.  

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Already walked.
Will pick up a free lunch at Catholic Church around 11 AM.
Otherwise, will be cleaning out, downsizing and rearranging my bedroom closet and getting out some of what I will take to IL.
I have to go to some store for black pipe cleaners and white puff balls for the sheep ornaments. Didn't have any at home.
NO Bible study tonight. Staying home.

 

I do feel better, but still hurts to breathe and move in bed.  

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Good morning, everyone!

 

It really does seem as though everyone has an awful lot going on...still!

  • @Jeepers That blood pressure reading looks kind of familiar to me. I get a few readings like that each week, but my doctor never gave me the tilt table test that I asked for. I know exactly what it feels like when my blood pressure drops that low (hot, sweaty, shaky, etc.), so I hope that they get this straightened out for you soon. I also know that when life gets chaotic, the symptoms get worse. Selling your house will happen...The lowering of the interest rates has gotten a lot of folks excited. The other thing is that when families make a purchase offer, they are usually emotionally invested in the property. They have already planned what they want to do with it and can already imagine themselves living in it. Relax...you are almost in your new home! 
  • @snapshotmiki I hope that you heal quickly. Movement is supposed to be good for aches to keep fluid from settling and causing swelling.
  • @Mt_Rider Tremors can be difficult to manage. Have you tried some of the weighted products on the market? We used a few weighted items to try to combat Parkinson's tremors for my Mom. In addition to the weights stabilizing the tremors, they also helped her to build strength.
  • @Littlesister I know a thing or two about reneging on no-shopping challenges. The good thing is that even if you slip up...you still win because you spent less than you would have if you weren't being careful. Besides, canning jars are never the wrong thing to buy! (Did I mention that I am a shopping enabler?) Great news about your blood pressure...Less stress is always best!
  • @Ambergris No more of the Jack & Jill stuff... You actually live on a hill! I hope that your doctor is able to figure out what is going on and address it for you.
  • @Becca_Anne I've just got a giant :bighug2:for you. You've got a lot on your plate, but you've got this! I know that you do. Try to take some time to recharge, even if it has to be stolen in 15 minute intervals. I will be thinking of you and your family...

As for me, I will be cooking and cleaning for Dad today so that I can return to my own house on Saturday. Hubby and I are contemplating our next big project, but we need to finish things at our own house.

Edited by themartianchick
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Did one batch of canning this morning and then had to revamp and clean up and reorganize in the kitchen before doing anymore canning. The beef will be finished today or maybe tomorrow morning. Then taken a break from canning to get other things done. Got the laundry done yesterday but still need to put it all away. I will do that this evening. The rest of the hamburger is still frozen and in fridge. So, either will get done tonight or tomorrow. Today I am doing pot-roast and just plain beef for other different things. 

I need to start looking around for a cheaper place to buy canning jars. The wide mouth pints are now between $18.99 and $21.99.  Haven't checked Walmart yet. Will do that online and if cheaper I will order from there. Also need to check Amazon but I have a feeling they won't be any cheaper. 

 

Mt. Rider, I know this is a long shot. But is there any chance you could have Lymes disease? Have you ever been tested for it. I know you have MS but I have heard of people that found out at a late stage they had Lymes disease and went for years not knowing nor being treated for it. My DD has Lymes disease, and it affects her in many different ways. She found out about a year after giving birth to my GS. Makes me wonder about him sometimes. But the doctors said she had it long before getting pregnant with him and also had rocky mountain spotted fever and had both with that pregnancy. It explained a lot of her symptoms. Once she was treated the symptoms went away. She got over the rocky mountain spotted fever, but you never get over Lymes disease. She has had flare ups off and on and the doctor gives her Doxycycline, and she has a ton of vitamins she has to take. It is a long shot but might be worth getting checked out for. The reason I ask is because some of the symptoms you describe was a bit like my DD. She even had brain fog, and she is much younger than any of us. 

 

Miki, when you said it hurt to breath and not know where your pain is when in bed. Is there a possibility you may have cracked a rib. The pain on breathing can be a giveaway for that to happen and I pray that is not the case and just badly bruised. I pray for you to heal quickly. 

 

Jeeper, Mt. Rider, Becca Anne and anyone I didn't mention here. All of you are in my :pray: and :grouphug: all around. 

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2 hours ago, Littlesister said:

Mt. Rider, I know this is a long shot. But is there any chance you could have Lymes disease?

Mt_R, I know you are well aware if Lyme disease but LS could be right.  It is not unusual even to test negative to Lyme disease and still have it.  It can lie hidden from detection. Your symptoms are very similar, especially those that don’t match MS.   There is also various autoimmune diseases it could be.  Just because you have one disease doesn’t rule out others.  It is quite common to have two or more autoimmune ones. :hug3:

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Miki, glad you are doing better and that it is only a bruise. Hopefully all will be well within a few days. 

 

The beef is finished. Just some hamburger left to do. Was thinking about doing one more round of canning and get the hamburger done, but my feet hurt my shoulder hurts and surprisingly my knee doesn't hurt. Had a brace on it all day. The hamburger can wait till tomorrow. It was still frozen this morning and some still is and a couple of them only frozen in the middle. So that will be fine in fridge. 

 

The house looks like a tornado went through. To many projects going at one time and when canning all day for almost a week, nothing else gets done. So tomorrow the rest of the hamburger, then this weekend and next week I will catch up on the house. Still downsizing and cleaning. Then the following week I will start canning pork. Then the canning will be done, and freezer will only have some chicken in it but not really enough to mess with canning it. I will just use that up first in meals. Maybe chicken 2 or 3 times a week will get that used up in about 2 weeks or so. After I get the house back together, I will start going through the food in the 2 refrigerator freezers. After that I should hopefully be back on track. 

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Glad you are feeling better Miki.

 

@themartianchick Your symptoms sound like mine with POTS. First sign is I start sweating on my forehead at my hair line. Then the back of my neck. Then I get hot and then the shakes. The end is hard to describe. I don't get dizzy like the room is spinning, but I get a faint feeling like my vision is starting to go. Light headed I guess you'd say. If I don't lie down soon, I will (and have) pass out. A doctor can do a 'poor man's test' in their office. It isn't quite as good but it gives a good indication. Mine did it and they had to quickly get me on the exam table because I was almost gone. Mine happened yesterday because he upped my BP med. I grabbed my BP machine and sure enough. 

 

Went back to the doctor today. Not much he can do but took me off the second BP pill. He gave me a script for the pill that he gave me in his office, to lower it if I need it. I'm to take it as needed if my BP gets up to 180 again. I think it's called clonidine. Pharmacy doesn't have it ready yet. 

 

Looks like the buyers are backing out for real. Something about mold in the attic, a dangerous pipe on the air conditioner, a broken pipe leading from the sump pump to the outside and the windows and driveway. Something about the structure in the basement. Realtor is going to call me tonight with more details but she said she is pretty sure it's a no go. Sigh.  :sad-smiley-012:

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I'm so sorry Jeepers hopefully the pipes and the basement issues are not too expensive to fix, the mold shouldn't be too hard to get a company in there to fix, we found out when we sold our last house that the attic wasn't vented at all, and had mold, it was about $500 to add an attic fan, and then about $1500 to have the mold treated in the attic. Have the issues you have to have fixed taken care of and then hope the next people won't have as much of a concern with the driveway and windows. 

 

Miki so sorry you're still hurting and hope you heal up soon:hug3:

Littlesister you're on a roll glad the knee brace is helping!

Martianchick I hope you can get back to your house soon and the coming project is something fun! :hug3:

Thank you for sharing your experience Mt Rider thankfully my mom did really great and doesn't have any other medical conditions other than her Blood Pressure issue that caused the stroke which is now under control with treatment. They were able to get clear margins on the first pass! So that's out of the way, and I was able to get the surgeon alone for a second before the procedure to alert them about my mom's significant medical anxiety so they also reassured her about her upcoming cataract surgery so I'm super hopeful since this wasn't as bad as she feared we can go into that calmer and with less stress for both of us.

Tomorrow I am gettting my flu/covid boosters and running some errands but plan to read most of the day and I'm so glad I brought both a crochet project and a book today it made the time go by faster and really kept my mind off everything.  Thank you all for your heartfelt best wishes and prayers I felt them :wub:

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Becca-Anne, I'm so glad your mom did so well. One less worry! Can they give her something for her nerves right before eye surgery? I know some doctors will give a mild sedative right before a proceedure to calm the patient. I'm thinking something like one Xanax tablet or something similar. They used to do that back in the day for colonoscopies. 

 

This site has really been jumping with a lot of nervous energy lately, huh?  I'm glad we have each other. :grouphug:

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